 | | - 2023 Survivorship Symposium recap
- Meet our new board members
- Meet our Ambassadors: Bob Cancalosi
- News & Shorts
|
|
|
|
|
| |  | THANK YOU TO EVERYONE WHO ATTENDED! We would like to thank everyone who attended our 2023 Survivorship Symposium as well as the speakers and volunteers who all helped everything come together. We had over 100 people attend in person and nearly 500 people watching online!
Many of you have asked us if the sessions would be available to watch online, and we're pleased to tell you that they have all been uploaded to a playlist on YouTube. We've also provided a link to all the PowerPoint slides if you want to review any of those. The button below will take you to our Symposium 23 website page where you'll find a link to both the slides and the videos. Also, if you did attend the Survivorship Symposium, but have not filled out our survey about the event, we would love to hear from you! |
| |
|
| | WELCOME NEW HEAD AND NECK CANCER ALLIANCE BOARD MEMBERS! |
| | Julia Porter
MSP, CCC-SLP
Speech-Language Pathologist; Team Lead, Oncology Rehabilitation; Adenoid Cystic Carcinoma survivor and HNCA Ambassador |
|
|
Trisha Wise-Draper
MD, PhD
Professor of Medicine with Tenure, Section Chief of Medical Oncology, Division of Hem/Onc and Medical Director of the UCCC clinical trials office |
|
|
Maie St. John
MD, PhD
Professor and the Chair of Department of Head and Neck Surgery and Professor of Bioengineering at UCLA; she holds the Thomas C. Calcaterra, M.D., Chair in Head and Neck Surgery and is Co-Director of the UCLA Head and Neck Cancer Program |
|
|
Heather Starmer
MA CCC-SLP
Clinical Associate Professor and Director of the Head and Neck Cancer Speech and Swallowing Rehabilitation Center at Stanford. |
|
|
| | MEET OUR AMBASSADORS:
BOB CANCALOSI
Survivor of Pleomorphic Adenoma |
| Bob has faced decades of major health challenges with pleomorphic adenoma, a rare type of salivary gland cancer. In 1978, at the age of 18, he had a parotid tumor removed from his neck and seven years later more recurring masses required surgical removal. He also underwent 33 rounds of radiation for 2 months to shrink more tumors. The effects of the treatments are long-lasting, and Bob sought treatment for facial paralysis. He then began treatment to offset adult-induced asthma from the radiation and chronic sinusitis. In 2017, another tumor was diagnosed as a rare salivary duct carcinoma, which was removed during a 12-hour surgery, requiring him to spent 21 days in the intensive care unit to recover. He had a platinum weight sewed into his right eyelid, and unfortunately, due to blood clot issues, Bob then underwent extensive leech therapy. Following this, MRIs were required every six months to monitor progress.
Click below to read the rest of his story... |
| |
|
| | |
|
|  | Do you have head and neck cancer that has come back or spread to other locations in your body? If so, you may be eligible to participate in the EA3202 clinical trial, testing a potential new treatment. Learn more |
|
|
 | For the first time since 2013, the proportion of 13–17-year-olds who received their first dose of the human papillomavirus (HPV) vaccine did not increase.
Overall, vaccination coverage by age 13 and by age 14 years decreased for adolescents born in 2008 compared to those born earlier, highlighting the need for catch-up vaccination for some adolescents. Source |
|
|
 | REARRANGED: An Opera Singer's Facial Cancer And Life Transposed Kathleen Watt performed principal roles with Boston Lyric Opera, Sarasota Opera Theater, and more until her career was derailed in 1997 by osteogenic sarcoma (bone cancer) in her face. Her new memoir shares her cancer journey. |
|
|
| | CLINICAL TRIALS AND OPPORTUNITIES |
| HNCA’s work would not be possible without our sponsors and partners. Please see below to learn more about our partners and the clinical trials that are underway to help head and neck cancer patients. For more information about clinical trials and where to find trials that might apply to you or a loved one, visit our Clinical Trial Finder or click on any of the trial opportunities below. Featured Clinical trials are meant to provide educational information about trials and not endorse any particular trial. |
|
|
| | |
|
| | | DO YOU FOLLOW? Are you following us on social media? It's just one more way to keep up to date with what is going on with us as well as other head and neck cancer related news and opportunities. So pick your favorite platform and give us a follow!
Facebook | Twitter* | LinkedIn | Instagram
*also known as X
|
|
|
| | | | Thank You to our Corporate Partners |
| | |
|
| | | | *Statement on Sponsor Content and Corporate Support: The information published on this website and in our materials is intended to educate you about Oral, Head and Neck Cancer. The content is not intended to take the place of a discussion with a qualified physician who is familiar with your medical situation. It is important to remember that each individual is different, and the reasons for—and outcomes of—any treatment plan depends on the patient's individual condition. If you have questions or concerns after reading any information on this website or in our materials, you should discuss them openly and honestly with your physician. Any products and manufacturers included on this site are presented for informational purposes only and do not constitute product approval or endorsement by HNCA. The content provided by HNCA is in no way intended to be a substitute for medical consultation with a qualified professional. HNCA encourages those using its resources to be careful when evaluating medical information or products. If you are unsure about your medical condition, consult a physician. Funding from our corporate partners supports HNCA’s programs and educational initiatives, and HNCA maintains independence in its design of programs, content, and initiatives. |
| | Head and Neck Cancer Alliance
PO BOX 21688 | Charleston, South Carolina 29413
866-792-4622 | info@headandneck.org |
| | Be sure to add our email address to your address book or safe senders list so our emails get to your inbox. Having trouble viewing this email? View it in your web browser |
|
|
| |
|
|
