HNCA News Bulletin

July 2021

Last Chance!  Register Now for the 2021 Virtual Head and Neck Cancer Survivorship Symposium

HNCA and the American Head and Neck Society (AHNS) will present the 2021 Virtual Head and Neck Cancer Survivorship Symposium next week! Join us for this year's webinars, a virtual survivor gathering featuring voice actor Rob Paulsen, and access to select AHNS 10th International Conference sessions. See the full schedule below!

TUESDAY, JULY 20, 2021

Webinar: Radiation Fibrosis
3:00 – 4:00 PM Eastern


Moderator: Nicole Schmitt, MD, FACS, Emory University Hospital, Winship Cancer Institute

Medical Presenter: Andrew Coughlin, MD, FACS, Creighton University

Survivor Presenter: Gary Kiel

Interactive Webinar: Stretching
4:15 – 5:00 PM Eastern


Nicole Fowler, MD, FACS, University Hospitals

Medical Presenter:
Barbara Murphy, MD, Vanderbilt University Medical Center




Webinar: Difficulty Swallowing (Dysphagia)
3:00 – 3:45 PM Eastern


Moderator: Vilija Vaitatis, MS, MD, 
Medical University of South Carolina

Medical Presenter:
Katherine A. Hutcheson, PhD, 
University of Texas, MD Anderson Cancer Center

Survivor Presenter: Ed Steger

Webinar: Laryngectomy Support
4:00 – 5:00 PM Eastern


Danielle MacNeil, MD, MSc, FRCS(C), London Health Science Centre

Medical Presenter:
Daniel G. Deschler, MD,
Harvard Medical School

Heather Starmer, MA CCC-SLP, BCS-S, Stanford University

Survivor Presenter:
John Ready, President, Get Voicing

Survivorship Gathering with Breakout Sessions   
5:15 - 6:15 PM Eastern

Opening Comments by Voice Actor, Throat Cancer Survivor, and 2021 HNCA SpokesToon, Rob Paulsen

Closing Comments by SupermanHPV, Tonsil Cancer Survivor, and HNCA Board Member, Jason Mendelsohn

Registrants of the Survivor Gathering will select one Breakout Session to attend:

  • Alternative / Complementary Therapies
  • Life After Head and Neck Cancer
  • Nutrition and Physical Eating Challenges During and After Head and Neck Cancer
  • Oral Care: Before, During, and After Treatment
  • Psychological Issues in the Survivorship Period: Strategies for Recognizing Negative Thinking / Addressing Fear of Recurrence


AHNS Opening Ceremony featuring HNC Survivor, Chef Grant Achatz
9:00 – 10:15 AM Eastern


Chef Grant Achatz is one of the most awarded and recognized chefs in the world--and a head and neck cancer survivor. Known for his innovative, emotional, and modernist style of cuisine he has been named Best Chef in the United States by the James Beard Foundation, honored by Time Magazine as one of the 100 Most Influential People in the World, and has given talks and lectures on gastronomy and design at conferences and universities around the world. In 2004 Grant began building his dream restaurant, Alinea. Partnering with restaurant neophyte Nick Kokonas they sought to redefine fine dining in America, questioning not only culinary concepts but also the guest experience, tableware design, and restaurant bookings.



Milton J. Dance Symposium:
Survivorship and Late Effects
8:00 - 9:30 AM Eastern


Moderator: Michael Moore, MD
Panelists: Heather Starmer, MA; Bruce Neustadter; Carolyn Dee; Marci Nilsen, PhD, MSN, RN; Joel Epstein, DMD, MSD; Rosemary Martino, PhD
This session outlines what is currently known about the goals and relative priorities of head and neck cancer patients who have undergone treatment. Specific cases with real head and neck cancer survivors will be used to highlight common treatment-related side effects and approaches that can be used to help reduce short and long-term toxicity.
AHNS Closing Comments featuring Jim Kelly
10:45 - 11:30 AM Eastern
Moderator: Cherie-Ann Nathan, MD
Jim Kelly is a three-time head and neck cancer survivor and a Pro Football Hall of Famer. He led his team to six AFC East Championships and four consecutive championship appearances and holds the all-time professional football record for most yards gained per completion in a single game. Jim founded the Hunter’s Hope Foundation in 1997 following his son’s Krabbe disease diagnosis, which took his life in 2005. Jim was first diagnosed with head and neck squamous cell carcinoma in 2013 and has been a Your Cancer Story spokesperson since 2017.

Welcome to Our New Survivor Ambassadors

HNCA is pleased to welcome two new survivor Ambassadors. The HNCA Ambassadors are dedicated to educating the community-at-large about these cancers. Our ambassadors are cancer patients, survivors and/or caregivers whose inspirational journeys give true meaning to what happens when you are diagnosed with cancer, during and post-treatment.

Bob Cancalosi

Bob has faced decades of major health challenges with pleomorphic adenoma, a rare type of salivary gland cancer. In 1978, at the age of 18, he had a parotid tumor removed from his neck and seven years later more recurring masses required surgical removal. He also underwent 33 rounds of radiation for 2 months to shrink more tumors.


Michael Murphy, MD

Michael is not the same as he was before head and neck cancer. His sweet taste is still diminished, and his energy level is lower. He still has tinnitus and hearing loss and will require hearing aids. His future includes ongoing doctor appointments, scans, and bloodwork. More importantly, Michael no longer takes things for granted. Before he got sick, he never really thought much about dying.

Now, he understands how real death is and how wonderful and brief our time on Earth really is.


Research Studies Seek HNC Participants


Study on Self-Advocacy in Male Cancer Survivors


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Risk Tolerance Among Survivors, Providers, and Caregivers of Head and Neck Cancer

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The Future of Head and Neck Cancer: Emerging Treatments, Clinical Trials, and Research Studies
*Sponsor Content | Learn HNCA's stance on corporate support below.

HNCA’s work would not be possible without our sponsors and partners. Please see below to learn more about our partners and the clinical trials that are underway to help head and neck cancer patients. For more information about clinical trials and where to find trials that might apply to you or a loved one, visit our Clinical Trials page.


Rakuten Medical’s global Phase 3 multi-center clinical trial with ASP-1929 to evaluate its efficacy and safety in patients with recurrent head and neck squamous cell carcinoma. ASP-1929 photoimmunotherapy is a combination drug and device anticancer treatment that utilizes a cetuximab monoclonal antibody conjugated to a photoactivatable dye that can be excited upon localized nonthermal 690 nm red light illumination to induce rapid cell death of target tumor cells. In the ASP-1929-301 study, enrolled patients will be randomized in a 2:1 fashion to receive either ASP-1929 photoimmunotherapy or physician’s choice standard of care (methotrexate, docetaxel, paclitaxel or cetuximab). The study is actively enrolling in 3 regions: Taiwan, Japan and the United States. Identifier: NCT03769506

*Statement on Sponsor Content and Corporate Support: The information published on this website and in our materials is intended to educate you about Oral, Head and Neck Cancer. The content is not intended to take the place of a discussion with a qualified physician who is familiar with your medical situation. It is important to remember that each individual is different, and the reasons for—and outcomes of—any treatment plan depends on the patient's individual condition. If you have questions or concerns after reading any information on this website or in our materials, you should discuss them openly and honestly with your physician. Any products and manufacturers included on this site are presented for informational purposes only and do not constitute product approval or endorsement by HNCA. The content provided by HNCA is in no way intended to be a substitute for medical consultation with a qualified professional. HNCA encourages those using its resources to be careful when evaluating medical information or products. If you are unsure about your medical condition, consult a physician. Funding from our corporate partners supports HNCA’s programs and educational initiatives, and HNCA maintains independence in its design of programs, content, and initiatives.

Thank You to our Corporate and Community Partners


Head and Neck Cancer Alliance
PO BOX 21688  | Charleston, South Carolina 29413
866-792-4622 |

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