|  | | - Register for our Annual Survivorship Symposium
- Meet our Ambassadors - this month, caregiver Sue Lim
- News & Shorts
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| HEAD & NECK CANCER SURVIVORSHIP SYMPOSIUM |
| |  | SURVIVORSHIP SYMPOSIUM - OCTOBER 5th Get your calendars pulled up and save the date for this year's Survivorship Symposium! On October 5th, we'll be heading to the City of Brotherly Love, and hope to have you join us!
Just like last year, this event will be happening in person and also virtually (for those unable to get to Philadelphia). Join the staff and board of the Alliance, fellow patients, survivors, caregivers, and clinicians as we meet and learn from each other. This event is free to attend (other than your travel costs if you attend in person - breakfast and lunch will be included). Just fill out the registration form linked below.
So brush up on your American Revolution history and re-watch Rocky - we're going to Philly! We look forward to seeing you in October! |
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| | FEATURED SYMPOSIUM SESSION TOPICS IN MORE DETAIL: |
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| Head and Neck Cancer is a Pain in the Neck: Methods to Improve Pain and Function During and After Treatment While surgery, chemotherapy, and radiation therapy are crucial in treating head and neck cancer, they often come with challenging and sometimes lasting side effects that impact the physical, functional, and emotional well-being of survivors. This Symposium session is designed to address the specific concerns and needs of patients and survivors who are undergoing and have undergone these treatments. In this informative and practical session, medical experts and a cancer survivor will explore the common side effects experienced by patients. Attendees will gain valuable insights into strategies and interventions that can better manage these side effects, improve quality of life, increased mobility, function and support long-term well-being.
Moderator:
Lara Roseman, MSN, APN-C, Advanced Practice Nurse/Palliative Medicine, MD Anderson Cancer Center at Cooper Medical Experts:
Ian Lawrence, MS, CCC-SLP, Speech-Language Pathologist, MD Anderson Cancer Center at Cooper Angela Capprioti, MD, Assistant Professor of Medicine/Palliative Medicine Physician, MD Anderson Cancer Center at Cooper Jamie Wigton, DPT, Physical Therapist, Cooper Rehabilitation at MD Anderson Cancer Center at Cooper Survivor Panelist:
Alliance Ambassador Susan Smith, Survivor of Tongue Cancer |
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Mindful Healing: Sustaining Mental Wellness Through and Beyond Head and Neck Cancer Treatments This session will explore ways to find emotional balance and renewed vitality in the face of adversity. Surviving head and neck cancer is a remarkable achievement that presents unique challenges. One key aspect of survivorship is managing the stress that accompanies this journey. This session is designed to equip survivors, caregivers, and loved ones with effective tools and techniques for coping with stress and enhancing overall well-being. Our experts will provide valuable insights into the multifaceted nature of stress in head and neck cancer survivorship. Participants will learn about the physical, emotional, and psychological impacts of stress, as well as strategies to manage these effects and support long-term wellness. Moderator:
Arielle Thal, MD, Assistant Professor, Department of Otolaryngology-Head and Neck Surgery, Thomas Jefferson University Hospital Medical Experts:
Dr. Brooke Worster, MD , Associate Professor of Medicine, Enterprise Director Supportive Oncology, Medical Director, MS in Medical Cannabis Science and Business, IEHP, Thomas Jefferson University Hospital Greg Garber, MSW, LCSW, Administrative Director, Division of Supportive Oncology, Sidney Kimmel Cancer Center at Jefferson Health Survivor Panelist:
Alliance Ambassador Gail Jackson, Survivor of HPV-Attributed Tonsil Cancer |
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| | MEET OUR AMBASSADORS:
Sue Lim
Oncology Nurse and Caregiver to husband Carl, lymphoepithelial-like carcinoma of the parotid gland; Seattle, WA |
| Sue Lim was a caregiver to her late husband, Carl, who was her best friend, fellow adventure seeker, and life partner of 25.5 years. He passed away in March 2021 from a recurrent metastatic lymphoepithelial-like carcinoma of the parotid gland (LELC). Diagnosed in May 2016, Carl initially noticed an enlarged left neck lymph node that felt stone hard. He was 45 years old, healthy and had no previous medical conditions. After many doctor visits it was confirmed that he already had Stage IV LELC. Carl underwent many treatments, tried clinical trials, and endured numerous hospitalizations. After several years, the cancer began to rapidly worsen in his liver. Only a few short weeks later, Carl passed away peacefully only six days after entering hospice. “In reflecting back at the past six years, the rarity of head and neck cancers and the isolation we felt without peer support was probably the most difficult part of the journey,” said Sue. “To this day, I have yet to meet or speak to another patient with LELC, and my heart goes out to anyone else who has been diagnosed with this dreadful and aggressive disease.” Sue's hope in becoming a Head and Neck Cancer Alliance Ambassador is to spread the word of the need for more research and funding for head and neck cancers, as well as supportive care to improve the quality of life for patients with oral and salivary cancers.” |
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| | Alliance Executive Director Amanda Hollinger joined Derly Munoz to discuss Head and Neck Cancer on the Taking Charge of My Cancer podcast.
Listen to the interview here. |
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| Join host Imerman Angels for a free webinar on September 25th: Genes and Cancer: An Overview
Cancer is confusing enough, but it's even more important to understand the influence that genes play on a cancer diagnosis.
What is genetic testing? What is cascade testing? When do I request a genetic test? What's the difference between inherited genes and the biomarkers of tumors?
The hope is this opportunity will allow you to be proactive and feel empowered to research even more about your and your loved ones’ health. Join them for this FREE event - register here. |
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| | REVIEW US ON GOOGLE!
If our programs and materials have made a difference to you, please consider reviewing us on Google.
Your review will help make us more visible so other patients, survivors, and caregivers can easily find us while searching online!
To write a review, you'll need to sign up for a free Gmail account. |
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| | PICTURE THIS!
We're looking for pictures of real people to use on our new website (coming soon), brochures, and social media. We don't want to use boring stock photos! Your photos could provide hope and inspiration to others going through head and neck cancer!
If we use your photo, we'll send you some Alliance "swag" (featuring our new logo that we will unveil soon) and provide photo credit on our website and social media.
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| DO YOU FOLLOW? Are you following us on social media? It's just one more way to keep up to date with what is going on with us as well as other head and neck cancer related news and opportunities. So pick your favorite platform and give us a follow!
Facebook | Twitter* | LinkedIn | Instagram
*also known as X
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| | | | | THANK YOU TO OUR PARTNERS! |
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| | | | *Statement on Sponsor Content and Corporate Support: The information published on this website and in our materials is intended to educate you about Oral, Head and Neck Cancer. The content is not intended to take the place of a discussion with a qualified physician who is familiar with your medical situation. It is important to remember that each individual is different, and the reasons for—and outcomes of—any treatment plan depends on the patient's individual condition. If you have questions or concerns after reading any information on this website or in our materials, you should discuss them openly and honestly with your physician. Any products and manufacturers included on this site are presented for informational purposes only and do not constitute product approval or endorsement by HNCA. The content provided by HNCA is in no way intended to be a substitute for medical consultation with a qualified professional. HNCA encourages those using its resources to be careful when evaluating medical information or products. If you are unsure about your medical condition, consult a physician. Funding from our corporate partners supports HNCA’s programs and educational initiatives, and HNCA maintains independence in its design of programs, content, and initiatives. |
| | Head & Neck Cancer Alliance
PO BOX 21688 | Charleston, South Carolina 29413
866-792-4622 | hello@headandneck.org |
| | Be sure to add our email address to your address book or safe senders list so our emails get to your inbox. Having trouble viewing this email? View it in your web browser |
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| Head & Neck Cancer Alliance
PO BOX 21688 | Charleston, South Carolina 29413
866-792-4622 | hello@headandneck.org |
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