 | | | - Webinars & Ask the Expert
- Move-A-Thon update
- Screening Program reminder
- Meet our Ambassadors - this month, Ed King
- Save the dates
- News & shorts
| | | | | | | | FREE WEBINAR MAY 5 HOPE & HEALING: ADDRESSING EMOTIONAL NEEDS DURING THE HNC JOURNEY
This webinar explores the crucial connection between head and neck cancer and mental health. A diagnosis of head and neck cancer can have a profound impact not only on physical well-being but also on emotional and psychological health. Our experts will address the emotional challenges faced by patients, caregivers, and survivors, offering practical strategies for coping and maintaining mental wellness throughout the journey. | | | | | | UPCOMING WEBINAR - SAVE THE DATE - JUNE 10, 2025
Putting Patients First: Navigating Clinical Trials for Head & Neck Cancer
| | | | ASK THE EXPERT - APRIL 21-25 Make plans to join us for April's "Ask the Expert." The topic is Physical Therapy Before & After Head and Neck Cancer Treatment.
Our expert will be Jacklyn Berry, PT, DPT, WCS, CLT. She's a Senior Physical Therapist and Certified Lymphedema Therapist with UPMC Rehabilitation Institute - Moon University of Pittsburgh Medical Center.
This event will be held April 21-25 on our Head & Neck Cancer online support community on Inspire. You must sign up for a free account if you're new to our Inspire forum. You can sign up anytime, but you won't be able to ask your questions for a few more days. | | | | | | | | | | | | | | Things are MOVING along! The 2025 Move-A-Thon is going strong! We're excited to share our progress thus far! - We’ve raised an incredible $45,500 toward our $100,000 goal
- We have 370 participants and 55 teams.
- We've moved over 2,338 hours while raising awareness for head and neck cancer.
Don’t forget to mark your calendar for our Move-A-Thon Celebration Call on May 1st at 4 PM ET, where we’ll spotlight our top teams, top movers, and top fundraisers (we'll send out a reminder email with the details). With two weeks still to go, there’s plenty of time to sign up, start moving, and make an impact—just visit our Move-A-Thon page for details. A heartfelt thank you to everyone who’s already laced up their shoes and joined us—you’re making a difference. | | | | | | | | SCREENING/AWARENESS PROGRAM | | | | OUR SCREENING PROGRAM RUNS YEAR-ROUND! We love that so many locations chose to hold a head and neck cancer screening event during Head & Neck Cancer Awareness Month, but we wanted to remind our friends working in healthcare that our screening program is open year-round!
We're happy to help with your registered screening event by sending promotional and educational materials (plus free shirts)! Find out more by clicking the button below. | | | | | | | | ED KING Husband, Father, Business Man | Survivor of Stage IV Tongue and Neck Cancer, HPV Negative | | In August 2014, Ed was diagnosed with squamous cell tongue cancer after he noticed a bump on the tip of his tongue that didn’t go away. He contacted an ENT surgeon and, after a PET scan, was diagnosed with cancer on the tip of his tongue and in several locations in his neck. After his tongue surgery, the treatment plan was to remove the affected lymph nodes and to begin daily radiation therapy after a short healing process. Based on advice he received from a doctor (who was also a HNC survivor), Ed requested a feeding tube be inserted, and thereby avoided the problems of malnutrition and dehydration. His radiation treatments ended up causing bone necrosis in his left lower jaw. After some time, when all of Ed’s follow-up tests continued to be clear, he underwent a procedure to have several pieces of bone extracted from his lower left jaw, and he spent 3 to 4 hours a day for 40 days in a hyperbaric chamber. Because of his experiences and the cancer patients he meets locally, Ed decided to start a head and neck cancer support group - which has been meeting monthly for many years now! | | | | | | | | | |  | Oncology Nursing Society Congress - Denver Alliance Patient Navigator Melissa Cooke attended the ONS Congress last week in Denver. The event is the largest and most comprehensive conference dedicated to oncology nurses. It was wonderful to be able to connect with so many head and neck cancer nurses. | | |  | National HPV Conference - Indianapolis Alliance board member, survivor, and ambassador Jason Mendelsohn and Alliance Director of Programs Eileen Sexton are attending the National HPV Conference this week. Jason is speaking at the conference (more on that next month), and helping us man our booth and spread awareness about HPV and our programs. | | | | | | SAVE THE DATE - SYMPOSIUM We don't have many details we're able to share (yet), but mark your calendars for October 4, 2025 and make plans to join us in sunny (hopefully) Los Angeles for our annual Head and Neck Cancer Symposium.
As in previous years, you may choose to attend virtually or in-person. The Symposium is free for head and neck cancer patients, survivors, caregivers, and their loved ones.
We hope to see you there in person! | | | | | | If you're a frequent visitor to our website, you might have noticed that we've quietly launched a re-design of the site. It's brand new, and we still have work to do on it, but we wanted to ask for your patience and understanding if you come across broken links or pages that you might have bookmarked that don't exist anymore. We are aware of several bugs that we're working on fixing, but if you are experiencing a problem with our site, please email us and let us know.
We'll talk more about our new website next month! | | | | | | | | FEATURED POSTS FROM OUR SPONSORS & PARTNERS | | Our work would not be possible without our sponsors and partners. Please see below to learn more about our partners and the clinical trials that are underway to help head and neck cancer patients. For more information about clinical trials and where to find trials that might apply to you or a loved one, visit our Clinical Trial Finder or click on any of the trial opportunities below. Featured Clinical trials are meant to provide educational information about trials and not endorse any particular trial. | | | | | | | | | | REVIEW US ON GOOGLE!
If our programs and materials have made a difference to you, please consider reviewing us on Google.
Your review will help make us more visible so other patients, survivors, and caregivers can easily find us while searching online!
To write a review, you'll need to sign up for a free Gmail account. | | | | | | PICTURE THIS!
We're looking for pictures of real people to use on our website, brochures, and social media. We don't want to use boring stock photos! Your photos could provide hope and inspiration to others going through head and neck cancer!
If we use your photo on our website or a print project, we'll send you some Alliance "swag" and provide photo credit on our website and social media. | | | | | | | | | | DO YOU FOLLOW? Are you following us on social media? It's just one more way to keep up to date with what is going on with us as well as other head and neck cancer related news and opportunities. So pick your favorite platform and give us a follow!
Facebook | Twitter* | LinkedIn | Instagram
*also known as X
| | | | | | | | | | | | THANK YOU TO OUR PARTNERS! | |  | | | | | | *Statement on Sponsor Content and Corporate Support: The information published on this website and in our materials is intended to educate you about Oral, Head and Neck Cancer. The content is not intended to take the place of a discussion with a qualified physician who is familiar with your medical situation. It is important to remember that each individual is different, and the reasons for—and outcomes of—any treatment plan depends on the patient's individual condition. If you have questions or concerns after reading any information on this website or in our materials, you should discuss them openly and honestly with your physician. Any products and manufacturers included on this site are presented for informational purposes only and do not constitute product approval or endorsement by HNCA. The content provided by HNCA is in no way intended to be a substitute for medical consultation with a qualified professional. HNCA encourages those using its resources to be careful when evaluating medical information or products. If you are unsure about your medical condition, consult a physician. Funding from our corporate partners supports HNCA’s programs and educational initiatives, and HNCA maintains independence in its design of programs, content, and initiatives. | |  | | | Be sure to add our email address to your address book or safe senders list so our emails get to your inbox. Having trouble viewing this email? View it in your web browser | | | | Head & Neck Cancer Alliance
PO BOX 21688 | Charleston, South Carolina 29413
866-792-4622 | hello@headandneck.org | | | | | | | | | | | |
